Head of Community & Patient Engagement

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About this role

Company Description

Sobi offers the opportunity to work at an international pharmaceutical company focused on specialty pharmaceuticals meeting the high medical needs of rare disease patients and providing treatment and services to them. Our employees come from a variety of backgrounds within research, healthcare, industry and the academic sphere.

Job Description

Part of the operational leadership team, the Head of Community & Patient Engagement leads Sobi’s patient and community engagement initiatives in ANZ, by building partnerships with patients, patient organisations, physicians and nurses to understand the overall patient journey, co-create strategies that enhances their lived experience, and improves quality use of medicines for patients. The role leads the development and implementation of patient support programs (PSPs) for the different patient groups treated with Sobi products.

Key Responsibilities

  • Develop sustainable partnerships and co-create strategies that enhance the understanding of the patient journey of the relevant therapeutic areas.
  • Integrate patient perspectives, insights and needs into the overall strategic planning process.
  • Establish and maintain strong partnerships with patient organisations, ensuring regular communication to understand patient needs and co-create strategies to support the overall patient outcomes aligned to business objectives.
  • Support and coordinate patient and/or community engagement activities, including patient forums, to include patients in key initiatives and programs.
  • Collaborate cross-functionally to integrate patient perspectives and insights into the strategic planning process.
  • Lead the development of patient communication materials, including disease awareness campaigns, etc.
  • Design PSPs in partnership with the community and act as a PSP owner.
  • Manage the 3rd party vendor in charge of the execution of the PSPs. Regularly monitor the effectiveness of the PSPs and adjust as required.
  • Lead projects directly linked to patients’ experience with Sobi products, including but not limited to: 1. Empaveli patient kits o enFuse pump  2. Patient Apps such as Florio
  • Other projects, tasks and responsibilities as assigned by management.

Qualifications

  • Bachelor's Degree in science, or medicine, or nursing, or pharmacy, or a similar relevant discipline.
  • A minimum of 5 years’ experience in the pharmaceutical / biotechnology industry.
  • Excellent relationship building (collaboration) and stakeholder management skills, both internally and externally.
  • Excellent verbal & written communication skills.
  • Proficient IT skills in all business-related packages including MS Office,.
  • Valid / unrestricted Australian driver’s licence.
  • Completed Medicines Australia CEP program.
  • Behave ethically, responsibly, and professionally in accordance with Sobi's values, internal policies and Australian Medicines Code of Conduct.

Additional Information

All your information will be kept confidential according to EEO guidelines.

Frequently Asked Questions

Is the salary disclosed for the Head of Community & Patient Engagement position at sobi?
The salary for this Head of Community & Patient Engagement role at sobi is not publicly listed. Click "Apply Now" to learn more about the compensation package on their official careers page.
Where is the Head of Community & Patient Engagement position at sobi located?
This Head of Community & Patient Engagement role at sobi is based in NSW, Sydney, Sydney, NSW, Australia, au. The position is listed as on-site or hybrid. Check the full job description or apply directly to confirm the work arrangement.
Is the Head of Community & Patient Engagement role at sobi full-time or part-time?
This is listed as a Full time position. It is posted as a Head of Community & Patient Engagement role at sobi.
How do I apply for the Head of Community & Patient Engagement position at sobi?
Click the "Apply Now" button on this page. You will be redirected to sobi's official application portal hosted on smartrecruiters where you can submit your application directly.
When was the Head of Community & Patient Engagement job at sobi posted?
This Head of Community & Patient Engagement position at sobi was posted on Jun 2, 2026. Apply as soon as possible — early applications are often reviewed first.
Head of Community & Patient Engagement
sobi
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